I think it is fair to say that ALL sufferers of V pain are pretty frustrated with the lack of research on the topic. Now there's a chance for us to make a difference!
Queen's University in Kingston, Ontario is conducting an online "Vulvar Pain Assessment Questionnaire." So no matter where you are in the world you can pitch in!
Which you totally will because you totally rock. It will be glorious to have someone listening for once, no?
From their website:
The purpose of the study is to develop a questionnaire (the VPAQ) that will help health care professionals assess symptoms of chronic vulvar pain (CVP; e.g., vulvodynia, provoked vestibulodynia.)...In order to choose which are the best questions, we are seeking help from women who experience CVP...
In order to participate, you must have experienced pain in your vulvar/genital region for at least three months. You must also be fluent, over the age of 18, and have secure access to the internet.
Part 1 takes 30-45 minutes. Part 2, which is optional, another 30-45 minutes. You do not need to do both at the same time. That's only an hour to an hour and a half to help save the world. So worth it!
Here is the link.