Support the Revolution! ChronicBabe 101 Book Coming Our Way

Hopefully you are already familiar with www.ChronicBabe.com, a website dedicated to helping young women with chronic illness build fabulous lives. I've re-posted and commented on some ChronicBabe posts in the past.

Founder Jenni Prokopy is putting together a book based on over ten years of running ChronicBabe, and she is using Kickstarter to fund it. Kickstarter is an "all-or-nothing" platform, so hop on over, even a buck will help: 

Donate to ChronicBabe Kickstarter Fund!

Like all Kickstarter projects, each donation level gets a 'reward,' a thank you for your contribution. Unlike other projects that require you to lay out big bucks to get a reward, Jenni's rewards start at yes, just a buck, so no excuse not to chip in!

Deadline is Friday March 27th, but you'll totally donate right now, right?

If you don't already get Jenni's weekly blog/vlog posts, sign up here.

 

VPAQ Reminder - Due March 1st!

Hey everyone! I wrote about this back in January but here is your timely reminder in case you missed it:

The VPAQ questionnaires are due next Monday March 1st! So hop on over and get yours done!

What is the VPAQ? The Vulvar Pain Assessment Questionnaire, conducted by Queen's University in Ontario. They are trying to get more information about vulvar pain, from the perspective of patients.

It's a lot of multiple choice questions, but you also get to respond to open-ended queries such as "What has seeking medical attention been like for you?"

It was sweet, sweet pleasure answering that one...I could finally unload all of the miserable details of the past ten years in a productive way.

So curl up with your computer and help others help you!

 

PS If you found me over the weekend thanks to my winning B-School video, WELCOME! I am so glad that you are here. As you may have guessed given the B-School application, I've got a lot going on in the background to grow this little website in the coming months. 

Contact me, even if it is just to say hi. It's fun to when a new subscriber becomes more than an email address and I get to hear a bit about you.

PPS As of this morning that little YouTube video had over 920 hits. Maybe by the time you receive this it will have reached 1,000? 

Help me End V Pain with a Tweet and a Post!

We all want effective treatments for V pain, right? In order for that to happen, we of course need to build public awareness. Without public awareness, there will be no demand for treatment, and without demand, there will be no supply!

Therefore in order for hurting vaginas to become happy vaginas, we need to create an effective communication, i.e. marketing, campaign. Which is exactly what I am going to do. 

I've entered a scholarship contest for Marie Forleo's B-School program, a course about non-sleazy, totally awesome online marketing for big-hearted people who want to change the world.

It will increase my chances of winning if my 90 second video is tweeted like crazy and posted on Facebook a gajillion times. Please help me out!

Note: If you don't want to "out" yourself, you can totally get around that by framing it as "I heard about this from a friend of a friend and thought it was cool, re-tweet this!" or "I know someone who is affected by this health issue so I'd love to spread the word! Re-post this!" (and the person you "know" can be me, not you, ya know?)

The contest goes from now to February 20th, so a Tweet and a post (or five) a day would be much appreciated. Put it on your calendar!

 

Guidelines 

Twitter

1.) Use the hashtag #winBschool and the link http://joinbschool.com (That's what the scholarship committee is looking for.) 

2.) Use the combo of #womenshealth and #painfulsex to maximize the chance of re-tweets. Even people who have never heard of V pain will get it, and women generally care about women's health.

Sample - (It's tough getting an effective message into 140 characters, so feel free to use this verbatim):

#WomensHealth=important! Build awareness re: #painfulsex. Watch http://bit.ly/1zIdRsQ and re-tweet! #winBschool http://joinbschool.com

 

Facebook

1.) Use the terms @marieforleo's B-School#winBschool, http://joinbschool.com (again, this is what the scholarship committee is looking for.)

2.) No one really "gets" terms like pelvic pain, pelvic health, or vulvodynia, so framing it in terms of women's health and painful sex makes it more likely that you will get people's attention. Include a "call to action:" an easy thing that people can do right away, like "watch the video," "like this!" or "please re-post." If you just say "Geez, this is depressing" or "Did you know about this?" the message won't get passed on.

Sample:

"Holy crap have you seen this video? I had no idea lady part pain was so common! Build awareness about #painfulsex by helping this bad-ass lady win a scholarship to @marieforleo's B-School. Re-post and tweet the video with the #winBschool and http://joinbschool.com link."

You can also re-post my posts ;) which can be found at facebook.com/yatrayoni and facebook.com/faithcornwall. (The first is public, the second private - feel free to friend me if you are not comfortable being publicly associated with the YatraYoni page.)